This is an apology letter to anyone we may have woken up between the hours of 4 and 5am this morning at the Holiday Inn Express we stayed at last night.
No one was dying.
No one was drunk.
No one was being beaten.
It was just our son being dragged to the car to catch our 6:30am flight back home.
Let me back up a bit.
We took a long weekend trip to upstate NY for celebrate my Mother-in-law's 80th birthday. It was to be a very low key weekend, but did require us to take 2 airplanes to get there with limited flights. So we did what we always do... prep for the worst and hope for the best. We wrote a social story about the trip. Prepped the boy as best we could, and off we went! Mike and I were both a bit leery due to our son's recent behavior. Meltdowns, tantrum and overall non-compliance has been the norm the past few weeks. But things were settling down, so maybe we would get lucky.
The trip there was perfect. Flights on time, good kid that listened well, bags retrieved from being checked-in. All was well. JJ was so excited to be in New York, He was so happy to see his Grandma, Aunt and Uncle. He even loved our rental car and hotel room. It was a very relaxing few days.
On Sunday night, we did cake and candles for Grandma. Her birthday is actually on Wednesday, but we were not going to be there at that time. This was not overlooked by JJ. He FLIPPED OUT when we sang "Happy Birthday" because it wasn't really Grandma's birthday. And he wanted to sing a different birthday song, but no one knew the song he wanted to sing. We knew we were treading into dangerous territory, so we hurried ourselves up and got back to the hotel room to get some sleep.
He knew we had to get up early. He was telling us all weekend that we would leave at 4:45 and that we would wake up at 3. It was in the book.
No dice. 4am rolled around. Mike and I were getting our stuff together. JJ would not move from sleep. Like a sleeping Giant, if you will. We cuddled him, and gave him kisses. Rubbed his back and talked smoothly to pry him from sleep.
All we got was "No! I want to sleep all day. We will go home tomorrow."
We set the timer to get him moving into his daily morning routine.
We begged.
We pleaded.
We bribed.
We wrote more books.
We negotiated a 4:46 departure time.
We did everything we could. I even told him he could go to the airport in just his underwear.
So you see, we were getting no where. I had to pick him up. It was 4:47 after-all!
He screamed like bloody murder. He wanted his clothes on. We put them on. He wanted different pants. All the pants were already packed away and in the car. His negotiating was not getting us anywhere.
So I grabbed him, hoisted him up as far as I could. Mike scooped everything up from the room. And JJ just screamed as we went down the hallway, into the elevator, down the elevator and into the lobby.
He screamed like I was killing him; taking out his toe nails one by one. But we just had to do it. We had to leave.
Thankfully the front desk guy was so nice. He told Mike not to worry, the hotel was not that full, and he had a little one at home too. Mike asked, "With Autism?" The guy said, "No. But I know how kids can be."
We got him to calm down in the lobby, changed his pants, and made our way. He walked out on his own accord to the car...no need to carry him. In the dark on the drive to the airport, I held his hand... me in the front seat, him in the back. He whimpered. He said, "I am sad. I was crying." And then he relaxed, looked out the window and said, "It is dark. Soon the sun will be peaking up!"
At this point, we knew we were OK. Our boy was back from him tantrum and was so much better.
That's when I cried.
Not because it sucked (because it did.)
Not because I was exhausted (because I was).
I cried because he is so tortured, and there is nothing I could do in the situation but to physically move him.
He has made so so so much progress in the past few years, but it was one of those times that remind us that yes, he has Autism. And it is not easy.
And we will never, ever, ever book a 6:30am flight again.
PS. We made it home without further incident. We are so glad we all made it home in one piece. Now off to schedule that massage appointment.
PPS. If you are reading this, and we did wake you up, please know a donation is being made to an Autism charity in your name. And we are really sorry!
Jen, it sounds like you did absolutely everything you could to make the experience as un-traumatic as possible for JJ, which I'm sure he appreciated even at the time. I'm sorry it was so difficult but at least you are already able to see the positive. :)
ReplyDeleteThanks Jamie. It wouldn't have been so bad had it not been so early in the morning and at a hotel. But you do what you gotta do. Guess sometimes we never really know what is going on when others (or children) are screaming bloody murder, :)
DeletePrisoner with autism writes a blog: paulmodrowski.blogspot.com
ReplyDeleteHOW I WAS CURED TOTALLY FROM AUTISM
ReplyDeleteI had my first attack of (AUTISM) when I was 20, I wasn't diagnosed until seven years later when I was totally experiencing speech delay. It was so terrifying that I began dropping things and losing sensitivity to sounds, having severe fatigue and muscle weakness. A horrible poor eyes contact began. I sometimes can't walk straight and fall onto walls and I get leaning disability, the English medications i used proved abortive. i was so frustrated that i had to contact My neurologist,he told me about a new RRMS (relapsing-remitting MS) drug which was only in its trial stage, CAMPATH. I started the chemo-type treatment and some prescribed drugs like: RISPERDAL, EFFEXOR XR, GEODON and MEMANTINE. which resulted in 1st seizure of my life, thereby adding more salt to my injury. As a result to proffer solution to my problems, i started going online in search for a cure, i came across a testimony of a woman who got her cure through HERBAL MEDICATION, at first, i doubted because of the misconception that autism can not be cured. But i later contacted the Doctor through the email provided, and I used his Herbal product, after 1 month of use, I noticed tremendous improvement in my health, 5 months after, I can proudly say, I've been totally cured by Dr.williams Herbal Medication from AUTISM..., If you have the same health issue, you may contact him for a total change of story, Via:autismepilepsy.blogspot.com . I believe your predicament will be a thing of the past just like mine.
As a sign of gratitude for how my son was saved from autism, i decided to reach out to those still suffering from this.
ReplyDeleteMy son suffered autism in the year 2013 and it was really tough and heartbreaking for me because he was my all and the symptoms were terrible, he always have difficulty with communication, , and he always complain of poor eye contact . we tried various therapies prescribed by our neurologist but none could cure him. I searched for a cure and i saw a testimony by someone who was cured and so many other with similar body problem, and he left the contact of the doctor who had the cure to autism . I never imagined autism has a natural cure not until i contacted him and he assured me my son will be fine. I got the herbal medication he recommended and my son used it and in one months time he was fully okay even up till this moment he is so full of life.autism has a cure and it is a herbal cure contact the doctor for more info on drwilliams098675@gmail.com on how to get the medication. Thanks for reading my story
Doctor Williams Natural Cure to Autism,I have ever prayed to share my testimony so others would read and have a reason to fight on for there sons. I know you receive hundreds of testimonies; I pray mine will be published one day.I was a High School teacher until my retirement from classroom.
ReplyDeleteBack when I was a teaching, I prided myself in my excellent memory.my son Having the ability to recall facts, speak eloquently, and mentor others, was all I lived for. my son was having a nice life, life was going fine until one day I noticed that my son memory wasn’t what it used to be. he was struggling to recall and retain facts. This was what he did with ease. he struggled to increase his study time and pace, because he felt he was not doing enough. As the year progress, he discovered that the more he studied, the less he recall. we all thought It was something normal, he had spent part of his life sitting down reading everything on ink and print. As time progressed, symptoms became frequent with other complications. As a result, I visited my doctor who advised I should visit a neurologist for my son proper diagnoses.My visit to a neurologist proved he had what is called classic" autism . Well before them, I have heard of children with autism, but classic" autism wasn’t a familiar word I had associated with autism. I went for further search in the internet; talked to doctors I know and even talked to autism foundations to broaden my knowledge of what my son we be facing.
There were lots of constraints living with autism. he had to abide with certain do’s and don’ts he wasn’t used to. his autism were getting worst. Phonation and other drugs which are Anti-autism drug were prescribed to try and stop his speech delay, but none proved suitable. Instead his liver reacted badly to the first drugs. The second drug failed to control the autism. he began to feel very dejected and for the first time started to feel depressed.On these autism days of his life, i took care of me son, drove him around and ensures he stayed on his meds.
I was told by my doctor never to take a single break without him taking his meds. Hell! I obeyed. I don’t want anything to happen to my son. But ironically, these Conventional Medications were killing him base on the side effect. I know they were,but was afraid of stopping it so the condition wont get worst,In desperation, I started visiting neurologists looking for a cure. Because he had stayed on these English medications long enough and he have not gotten a cure except more complications.
I wanted other natural alternative devoid of side effects created by Phonation and other anti-autism drugs. Well, my search continued until someone suggested Herbs as a better alternative to treatment. But what do I know about Herbs, I am not an Herbalist so I know little about Herbs. I did more findings on various blogs where I saw lots of comment where people shared testimonies’ of being cured from autism , Herbs had cured people diagnosed of autism, so mine son won’t be an issue.I needed to get Herbal medication for my son autism. So I read a lot of blogs where people who shared their testimonies kept mentioning WILLIAMS Anti-Autism Herbal medication. I searched for a blog on Williams didn’t find one. I just followed the email address of Doctor Williams that was shared on these testimonies; I got lucky when I got a reply from Dr. Williams on how to get the medication from his customer service, I followed his instruction, which my son use in less than 1 months, his frequent autism reduced drastically. Within a period of 1 months, he was cured. I went back to my neurologist, where my son was checked up and marked autism free.Long story right… I can’t say all this in 10 lines, but if you are reading this, I want you know that Williams is the main drug for you in the cure for autism. It worked for my son; I believe it will work for you also. for more information on how to get his product you can email Dr Williams on drwilliams098675@gmail.com
"With Dr Williams,herbal medicine I felt very empowered after my son started his medication and the results came very quickly I might add. Contrary to what my doctor had recommended for my son, (that autism have no permanent cure) I have succeeded in less than 4 weeks to treat all the symptoms associated with my son autism (including the speech delay, and the abnormal behavior ) and within 4 weeks, my son autism was completely gone. Thank you so much for this terrific publication. I also my son have recently experienced a symptom-free of poor eyes contact, which was nothing short of remarkable, considering the awful state my son was in before I was introduced to dr williams life changing medication,for more information on how to get his medicine you can email him in drwilliam098675@gmail.com
ReplyDeleteWOW ALL THANKS TO DR WILLIAMS I HAVE NEVER BELIEVE IN HERBAL REMEDIES.
ReplyDeletemy son have been a patient of autism . I had tried a lot of anti viral med prescribed to me by doctors over how many years now but I could not see any improvements in my son symptoms. One day while going through the internet , i got to know about this great Herbal Dr who uses his herbal remedies in curing people from autism,quickly i contacted him and he prepared a herbal medication for my son which i received and he used it as instructed by dr williams. After few weeks the improvement were very visible. the speech delay and the poor eye contact stopped, I would recommend this to all my friends,families,around the globe suffering from autism.you can contact him through his email on drwilliams098675@gmail.com.for advice and for his product THANKS TO YOU ONCE AGAIN ADMIN FOR SUCH AN INFORMATIVE BLOG.
Thanks to Dr Williams I am so happy today, my son have been suffering from autism for the past 8 years now, and i have spent a lot on western drugs which has all proved abortive, i have tried all means in life to get my son out of this , but there was no answer until i decided to try herbal solution and i found Dr Williams online and i contacted him and after he took his medication as instructed, my son is now completely cure from autism within those week of usage, i am so much happy, thanks to Dr Williams for helping me get my son life back again without any form of crisis, i promise to tell your name and good deeds to the whole world,if you have a son with autism you can email him on drwilliams098675@gmail.com for more information .
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ReplyDeleteSPECIAL THANKS TO DR WILLIAMS FOR THE AUTISM CURE HE
ReplyDeleteRENDER TO MY SON.
I'm giving a testimony about Dr. WILLIAMS for the great deed he have done for my family, he has
the natural cure to autism, he cured my 7 years old son from autism ,
I went through different website where I saw a testimonies about this great Dr Williams, I was like: 'Dr Williams have the autism cure why are
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WOW ALL THANKS TO DR WILLIAMS I HAVE NEVER BELIEVE IN HERBAL REMEDIES.
ReplyDeletemy son have been a patient of autism . I had tried a lot of anti viral med prescribed to me by doctors over how many years now but I could not see any improvements in my son symptoms. One day when going through the internet , i got to know about this great Herbal Dr who uses his herbal remedies in curing people from autism,quickly i contacted him and he prepared a herbal medication for my son which i received and he used it as instructed by dr williams. After few weeks the improvement were very visible. the speech delay and the poor eye contact stopped, I would recommend this to all my friends,families,around the globe suffering from autism.you can contact him through his email on drwilliams098675@gmail.com.for advice and for his product THANKS TO YOU ONCE AGAIN ADMIN FOR SUCH AN INFORMATIVE BLOG.
Irrespective of receiving daily oral or future injectable depot therapies, these require health care visits for medication and monitoring of safety and response. If patients are treated early enough, before a lot of immune system damage has occurred, life expectancy is close to normal, as long as they remain on successful treatment. However, when patients stop therapy, virus rebounds to high levels in most patients, sometimes associated with severe illness because i have gone through this and even an increased risk of death. The aim of “cure”is ongoing but i still do believe my government made millions of ARV drugs instead of finding a cure. for ongoing therapy and monitoring. ARV alone cannot cure HIV as among the cells that are infected are very long-living CD4 memory cells and possibly other cells that act as long-term reservoirs. HIV can hide in these cells without being detected by the body’s immune system. Therefore even when ART completely blocks subsequent rounds of infection of cells, reservoirs that have been infected before therapy initiation persist and from these reservoirs HIV rebounds if therapy is stopped. “Cure” could either mean an eradication cure, which means to completely rid the body of reservoir virus or a functional HIV cure, where HIV may remain in reservoir cells but rebound to high levels is prevented after therapy interruption.Dr Itua Herbal Medicine makes me believes there is a hope for people suffering from,Parkinson's disease,Schizophrenia,Lung Cancer,Breast Cancer,Colo-Rectal Cancer,Blood Cancer,Prostate Cancer,siva.Fatal Familial Insomnia Factor V Leiden Mutation ,Epilepsy Dupuytren's disease,Desmoplastic small-round-cell tumor Diabetes ,Coeliac disease,Creutzfeldt–Jakob disease,Cerebral Amyloid Angiopathy, Ataxia,Arthritis,Amyotrophic Lateral Scoliosis,Fibromyalgia,Fluoroquinolone Toxicity
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DR WILLIAMS HERBAL CURE TO AUTISM.
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ReplyDelete